- Title
- Stigma Associated with Parenting an Autistic Child with Aggressive Behaviour: a Systematic Review
- Creator
- Swaab, Linda; Goodwin, Jane; Wroe, Jaime; Woolard, Alix; McCormack, Lynne; Campbell, Linda
- Relation
- Review Journal of Autism and Developmental Disorders Vol. 10, p. 281-294
- Publisher Link
- http://dx.doi.org/10.1007/s40489-021-00292-5
- Publisher
- Springer
- Resource Type
- journal article
- Date
- 2023
- Description
- Background: There is a growing body of research focused on autistic individuals who present with aggressive behaviour. Aggressive behaviour has been found to occur more frequently in autism compared with other developmental disabilities or the general population. The most common types of aggressive behaviours are self-injurious behaviours, aggression towards others and the destruction of property. Aggressive behaviour can threaten access to support services and education. Many types of stigma are experienced by parents as a result of their child’s diagnosis or observed aggressive behaviour (e.g. ignorance, prejudice and discrimination). The aim of this systematic review was to synthesise the current research into the experience of stigma by parents of autistic children who display aggressive behaviour. The specific question addressed by this review was ‘Do parents of autistic children with aggressive behaviours experience stigma?’. This review found that stigma is experienced in many forms and contributes to higher levels of stress and poorer quality of life for these families than for the general population and other disabilities. Methods: The published English-language literature was examined using multiple online databases, grey literature and hand searches. The review was conducted and reported using PRISMA guidelines. Studies investigating family members of children with a diagnosis of autism who exhibited aggressive behaviour were included. An additional criterion was that the participants had experienced some form of stigma because of their child’s autism and/or aggressive behaviour. All studies that met the criteria were critically appraised. No limits were applied for date of publication up until February 6, 2019. Results: Total search results yielded 5707 records. Of these, nine studies were identified and reviewed. Two were identified as mixed method designs and the remaining seven were qualitative designs. Despite diverse research methods, research questions, interview guides, a large variation in age range and year of publication, the stigma associated with caring for an autistic child with aggressive behaviour was consistently identified. Conclusions: Taken together, the available research literature suggests that autistic people and their families experience high levels of stigma. For parents of autistic children who behave aggressively, stigma is even more prominent and invasive. This systematic review can conclude that this triad of autism, aggression and stigma is not well understood and is under-investigated.
- Subject
- autism; agression; stigma; parents
- Identifier
- http://hdl.handle.net/1959.13/1487765
- Identifier
- uon:52247
- Identifier
- ISSN:2195-7177
- Language
- eng
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